Systematic literature review and assessment of patient-reported outcome instruments in sickle cell disease

Patient-Reported Outcome Instruments in Spine Surgery.

STUDY DESIGN A critical review of the current literature. OBJECTIVE The purpose of this study was to determine frequency, trends, and methods of utilization of spine-related PROIs over the last 10 years. SUMMARY OF BACKGROUND DATA Patient-reported outcome instruments (PROIs) have become the gold standard to assess the efficacy of various medical and surgical treatments. Currently, however, ...

The Use of patient Reported Outcome Measures for Rheumatoid Arthritis in Japan: A Systematic Literature Review

BACKGROUND Patient-reported outcomes (PRO) obtained through routine medical care may identify patients' day-to-day burden and help tackle the disease from the patients' perspective. However, there is a paucity of information regarding the availability of PRO data and PRO tools for rheumatoid arthritis (RA) in Japan. OBJECTIVE We reviewed the literature on PRO data availability and to identify...

Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Trials.

Patient-reported outcome measures for hip preservation surgery—a systematic review of the literature

Hip preservation surgery is rapidly advancing and patient-reported outcome (PRO) measures are becoming an integral part of measuring treatment effectiveness. Traditionally the modified Harris hip score has been used as the main outcome measure. More recently, new PRO tools in the field have been developed. We performed a systematic review of the English literature from MEDLINE, EMBASE, Cochrane...

The rheumatoid foot: a systematic literature review of patient-reported outcome measures

BACKGROUND The foot is often the first area of the body to be systematically affected by rheumatoid arthritis. The multidimensional consequences of foot problems for patients can be subjectively evaluated using patient-reported outcome measures (PROMs). However, there is currently no systematic review which has focused specifically upon the PROMs available for the foot with rheumatoid arthritis...